Hi All,
Had a follow up appointment with my medical oncologist today to review how the Steroid treatment is going.
My creatinine did drop by 76 points in the past 10 days which is excellent news. Right now they are weening me off the Steroids slowly, but need to be carefully monitoring my creatinine to ensure that the steroid dose continues to be effective. It is possible if the steroid dose is too low, or weened off to fast, the creatinine levels will go up again.
So for now they are going to continue to monitor me through weekly bloodwork. Hopefully the creatinine will continue to come down.
There are really only two outstanding issues that I am trying to deal with right now.
First, my left thigh and buttocks is quite sore, aches frequently and in some cases I am unable to put any pressure on my leg at all without feeling pain. This was most likely caused by the awkward position they had my legs in for my last stent replacement surgery. It is either muscle strain or sciatica issues. Either way, it will take some time to heal - possibly weeks to a few months.
Secondly, by the end of the day (mostly after dinner) I move into this phase where I am often unsteady on my feet, dizzy and lightheaded. I have many medications that cause this. It's difficult in the evenings, as Jamie has to help me sometimes move through the house as it can hit me at any time. My hope is that once we get back on track with my creatinine, and perhaps if they remove the ureteral stents, they may be able to take me off of some of these current medications.
But all in all, I can live with those two small issues right now as I am at least moving in the right direction.
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