Todd's Journey

I just received this from my Nanny. She always looks out for me, and is another one of my rocks. (not to mention she is 101 years old). Oh, and I am her favorite grandchild... lol

First, I must make a quick correction to my last video post. My best cousin-in-law, Christopher, did not actually say I was looking poorly in my videos, he actually said I was looking good in the videos. I was trying to make a joke about how I use make-up to look good. Didn't quite come off correctly. (BTW- Christopher and Joelle are truly the best of the best - always checking in with me.)

Now, as you know, I finally kicked the hiccup issue to the curb with the very good help of Dr. Moisette and Dr. Reaume. Howver, it all started with the Chemo nurses, Jackie and Andrea, who worked tiredlessly to reach an oncologist and help me deal with the issue. In appreciation of the work they all did for me, and for finding a solution to my hiccup issue, I sent Dr. Reaume and Dr. Moisette some very nice edible bouquets of chocolate dipped strawberries and different fresh fruit. The nurses at the chemo unit in Winchester received a thank you card from me and gift cards for the Keg. I think it's important to recognize the help some doctors and nurses give. It's easy to complain about how they aren't doing a good job (I admit I have done that on occassion as well) but it's also easy to forget how we should thank the ones that work hard to help us.

Dr. Moisette just called me, and was somewhat emotional about how thrilled she was with the gesture, and the edible bouquet. She said she's never had such thanks from a patient, and she was more thrilled that she was able to help me out. She said my gesture inspires to thrive at what she does, and to keep doing what she does, as the appreciation makes it all worth it.

So the moral of this post is to tell you all to make sure you show appreciation when due, and not just complain about everything.

Speaking of appreciation, I have to thank my aunt-in-law Linnie for making me some of her most famous potato salsd. I just love her salad, and for her to make me a big bowl to enjoy for a few days is awesome. I also have to thank my cousin, Tammy. She said she was going to make Jamie and I a big plate each of Thanksgiving dinner. We can't wait to eat it!!!

Have a good one. Will write again soon.

Here is the update for Monday, September 25th.

Every one of us has a rock, a support, an angel that look out for us and walk with us through life. Sometimes we know who these angels are, but sometimes we don't. But we all have them.

For me, I know who my rock and support is. Jamie is truly a god send for me. He cares for me without complaint. Even on the days where I am less than cordial with him.

He watches my medication times, checks on me throughout the night, bought me an alert button that I can press if I need him to come to me.

He fixes my dressings on my neph tubes when needed. He helps me change my "diaper" underwear when needed, he empties my urinal, he helps clean me if I need it.

He lifts me up when my legs are weak, and he helps me to the bathroom. He carries me when my legs fail me.

He takes me to all my appointments and is in regular contact with my pharmacist regarding my medications and refills.

He sits patiently with me during my chemo treatments. Helps me move through the hospital in a wheelchair.

But that is only the medical support he gives me.

He also cooks all the meals for us. He does all the dishes. He does all the housework. He gets the groceries every week. He runs into town anytime we need something.

He does all the yard work. He mows the lawn. He closed the pool on his own. He put away all the summer furniture and closed up the back yard.

You cannot begin to imagine how bad I feel, everyday, watching him do all this on his own while I sit or lay here in a state where I cannot help him.

I don't know where I would be today if it were not for Jamie. I love him so very much for what he does for me. And what he HAS done for me for the past 28 years.

I seriously believe I would be gone by now if not for Jamie. Because I know, there is just no way I could do this all on my own, or expect my parents (who also have their own challenges) to take care of me.

Jamie is my rock. Jamie is my support. Jamie is my angel. Jamie is reason for living right now. Jamie is my life.

Well, the doctors may have finally figured out why I am suffering through the hiccups these days. They ran a chest x-ray on me Thursday and discovered that there is one cancer node that is pressed up really close to my diaphram. This seems to be what is irritating it, causing the hiccups.

The only real long term solution for that is chemotherapy. After more sessions of chemo, the node should shrink or die, and my diaphram may return to it's normal self again.

In the meantime, they have put me on a medication called Backofen, which is a muscle relaxant, to relax the diaghram in hopes to stop the hiccups. I am so happy to let you know that during the night I had almost 10 hours of sleep, WITHOUG HICCUPS. The Baclofen seems to work very very well at stopping the hiccups. And when it doesn't completely stop them, it certainly reduces the intensisty of them.

I have to thank both Dr. Mousette and Dr. Reaume for seemingly finding the solution to my hiccup issue. Dr.s have become more like investigators in medicine these days. They have to try and find the right combination of medications and treatments for a huge mess of symptoms.

The only real side effect to the Baclofen, is it is a muscle relaxant so it doesn't just work on my diaphram.. We discovered last evening, after trying it for the first time, that unless I go to bed within 30 minutes of taking it, I have great difficulty in walking. Last night I barely made it up the stairs when Jamie had to lower me down to the floor as my legs completely relaxed and gave me no help. While that doesn't sound great, Jamie and I did laugh about it. We did look rather pathetic sitting on the floor of the upstairs hallway waiting for a bit of strength to come back. Besides, for us, the fact the hiccups has lessened and almost completely resolved, was worth any small inconvenience of losing a bit of leg strength.

The lesson was learned. Now when taking Baclofen, we will make sure I head to bed before the full muscle relaxant effect kicks in.

So that's the update. It is a good update. And I honestly could not be happier to have found some relief from the hiccups. I would not wish that upon any of you. (including my enemies).

Talk to you all on Monday.

Had my Day 8 Chemo session today. This was only one particular drug that was used and is supposed to be less rough on my body in general. I still have major hiccups, which the doctors (and nurses) are trying to figure out for me. There are different medications they can try, however with every medication comes potential other issues. So, it's a tricky needle to thread. But they are working on it.

The nausea and getting sick is still a bit of an issue. Normally that would be resolved by now, but for me, it's still an issue. You learn very quickly that some people have very little side effects from Chemo, and others have a lot. I am considered in the middle. If I can get rid of the hiccups and nausea, I'd only have the fatigue left.

As for the fatigue, I know many of you have seen my video blogs, and were probably not going to say anything, but yes, I know how tired and sickly I look. This is simply fatigue, which is pretty much 24-7 for me these days.

In any regard, I am now clear of Chemo for two full weeks, so hopefully some of the side effects will resolve before I start my 2nd cycle of Chemo on October 4th.

Thanks for reading, and thanks for all the support.

Well, it does seem that as each day goes by after the chemo, they do get a little bit worse than before. The hiccups are significantly a problem for me, as they hardly ever stop. My medical oncology doctor has been told about them as it's possible they may be able to give me some medication to help with it.

Last night I started to get a stiff jaw, and more feeling of chest congestion. This is related to my chemo, and today it seems to have subsided some.

Yesterday the biggest set back for me was hurting my leg again. I had been doing so well with improving the strength and pain issues with my legs, but as I made my way to the washroom yesterday, just as I was getting there, I was feeling quite faint and fell down onto the toilet seat. This cause me to pull the muscle or hit it in the wrong way. So now I am back to being pretty immobile for the next little while.

Hopefully the doctors can get rid of these hiccups and that my leg strength improves.

Setbacks happen. Just have to keep moving forward.

Here is the third Chapter of my journey. Exactly 5 days after my first chemo session.